Wednesday 15 July 2009

Confirmed!

We went to see the private Ed.Psych on Monday and she did an ADOS test which confirmed all we have known for the past year (and more that we didn't know). CY DOES HAVE ASPERGER'S SYNDROME. The report will be ready in a couple of weeks, but she noticed loads of things that even we as his parents haven't cottoned on to.

Now perhaps they can pull their finger out at the LEA and get him the education he deserves. And we can start understanding our son instead of having every problem tinged with 'does he know what he's doing and needs a sanction or does he genuinely not understand?'

Am also getting more and more angry and appalled at the statement from our Ed.Welfare Officer when I said the only way CY would get qualifications would be to have home tutors and her reply was 'Perhaps we have to face up to fact that CY is not going to have the kind of life where he needs qualifications'. Yes, thanks for writing my son off when he's 12.

Today I have spoken to the SENCO at CY's school to let her know we will be taking up a place at the PRU if poss (so no more trying to get him into mainstream for the moment) and we'll be pushing for home tutors via assessment and possible Statement. She said school still didn't have enough evidence to do this themselves but that we should. Also said our private Ed.Psych had spoken to the school Ed.Psych (eek, anything over 5 minutes and we are having to pay the private Ed.Psych for her time!). She confirmed the actual report will be available in 2 weeks. I confirmed we will be writing to CAMHS to tell them of developments and hurry them up for a report, which is needed for LEA assessment.

Rang EWO at LEA to tell her we are keen to take up place at PRU and pursue home tutors. She wasn't in but GB is passing the message on.

Now ringing CAMHS Key Worker to find out name of Psych who is doing the tests there and see if we can hurry that up.

This is a full time job - there should be a person who does this co-ordinating for you!

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